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15/1/2021

Communities against Cancer

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We are pleased to announce the continuation of the Action Hampshire Communities Against Cancer project from January 2021, funded by the Wessex Cancer Alliance.

Communities Against Cancer is a project about cancer awareness and prevention. It is about helping people understand how to reduce their risk of cancer and how to stay healthy. It is also about helping people understand how important it is to contact their Doctor if they notice an unusual symptom.  This may be particularly relevant for communities who face poorer health outcomes and health inequalities.

Covid-19 update

Despite Covid-19 and the current lockdown, we know that cancer hasn’t stopped. In fact, recent events have highlighted the health inequalities which exist and the impact on cancer screening and services. It is even more important that we keep talking about cancer and support all communities to become more aware and knowledgeable in their own health needs.

More funding available!
Action Hampshire have received funding from the Wessex Cancer Alliance to provide grants to individuals, groups and not for profit organisations. Grants can be used by groups in creative ways  to engage with the people they’re supporting to get across key cancer messages. We know that cancer is more treatable the earlier it is diagnosed so we want people to understand how important it is to attend cancer screening and go to their Doctor is they notice something unusual for them.  Early diagnosis saves lives.

Groups and individuals can apply for a grant of up to £5,000 (starting from January 2021).  See the box below for links to the Application Form and accompanying Guidance Notes.


Communities Against Cancer is funded for prevention and awareness cancer projects. It is not for funding groups to support people living with cancer.  Information and support for people affected by cancer in Hampshire, Dorset and the Isle of Wight can be found here on the Cancer Matters Wessex website.

  • If you would like to apply for a Communities Against Cancer grant, please read this document  Grant information & guidance 2021 and refer to these maps to see if you are eligible to apply.
  • Areas where grants can be awarded include Portsmouth, Havant, Gosport, Southampton, Hedge End, Eastleigh, New Forest, Bournemouth, Christchurch, Poole, Weymouth, Portland and the Isle of Wight.
  • When you are ready, please complete this Grants Application Form and email it to us at Action Hampshire
  • If you have any questions or would like to discuss your ideas for a grant application, please email Claire Vincent
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26/11/2020

Wessex Cancer Alliance Patient, Carer and Public Involvement Network

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Ways to get involved 

Wessex Voices and Wessex Cancer Alliance recognises people affected by cancer are our partners in shaping local cancer services and support.  How people want to get involved will vary so we want to offer different ways of doing this.  

There are different ways to get involved depending on what you would like to do. People have shared their experiences in a variety of ways:
  • at cancer events
  • by giving feedback via leaflets and websites
  • sharing their views on screening via surveys and focus groups
  • taking part in phone interviews to evaluate new services
  • joining our Steering Group
  • helping design projects and review cancer pathways.

Our Patient, Carer and Public Involvement Network involves a diverse range of people from across Dorset, Hampshire and the Isle of Wight. Working together with the Wessex Cancer Alliance, members volunteer to get involved in plans to improve cancer services and support for our residents, ranging from how to keep people well; making sure more people get an early diagnosis of cancer to give them a chance of better outcomes; to improving people’s care and support through and beyond their treatment.

Anyone affected by cancer can join at any time, including patients, carers, family members and anyone else who is interested in participating. It’s for people from all parts of Dorset, Hampshire and the Isle of Wight and for people of all ages and experiences, especially those with diverse ethnic and cultural backgrounds.

If you would like to get involved, please complete this 
online form. We also have information about the Network and a joining form in Easy Read.
Or get in touch at: wessexvoices2@helpandcare.org.uk or 07595 424198. 
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2/11/2020

Volunteers needed for Cancer Matters Stage 2 website testing

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The Dorset Cancer Partnership is seeking new volunteers to help with Stage 2 testing of their new website, Cancer Matters Wessex, a new website that aims to provide more local and personalised information for cancer patients in Dorset and Hampshire and the Isle of Wight, including people who have had cancer in the past or are worried they may have cancer, and for family, friends and carers of patients living with cancer. The website is sponsored by the Wessex Cancer Alliance in collaboration with the Dorset Cancer Partnership and Macmillan Cancer Support.
 
The first phase launch of the website took place in July 2020. Second phase testing will focus on information about specific cancer pathways, including diagnosis, treatment and support available.

If you are interested and you are:


  • a resident in Dorset, Hampshire or the Isle of Wight
  • have experienced a cancer diagnosis and understand the journey or pathway from diagnosis through treatment and beyond for bowel, breast, lung or prostate cancer
  • comfortable using the internet and online forms
  • willing to bring your personal knowledge to the review and feedback of the cancer journey content

Then please complete the Expression of Interest form by 9am on Monday, 16 November to register your interest. 

Please share this information with anyone you know of who meets the above criteria and may be interested in taking part. Thank you.

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23/10/2020

Thinking styles after a cancer diagnosis research by University of Surrey

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Have you been diagnosed with breast cancer (stage 1-3) within the past 24 months? Researchers at the University of Surrey would like to hear about your experiences.

Understanding factors that influence how people cope after a cancer diagnosis is important to better support those recently diagnosed. University of Surrey is exploring the different ways people think about their illness and how this may be associated with their psychological wellbeing.

We are looking for people to fill out a short questionnaire exploring thinking styles, wellbeing and health. Findings will help inform interventions to support for those recently diagnosed. You must be over 18 years of age and living in the UK to take part.

If you're interested in participating, please click on the following link to complete the survey: https://surreyfahs.eu.qualtrics.com/jfe/form/SV_e2tDvQrWtSx5xBj

If you would like more information, please email: sarah.beck@surrey.ac.uk

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16/10/2020

‘Right by You’ patient, carer and community advisory group seeking new members

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gf you or a loved one has been affected by cancer, you could help improve cancer support in Southampton. Macmillan Cancer Support and the Wessex Cancer Alliance (WCA) are working together on a new project, the Right By You patient, carer and community advisory group. 

Why your help is needed
People have told Macmillan and WCA that cancer care provided by GP practices and hospitals is not always joined up and people don’t always get the support on the things that matter to them. 

“I have this team around me, supporting me…. sometimes the team don’t work very well together”

“It’s the little things, that are not the medical things in the community …  it can feel as if we are left to our own devices”


This new project is about patients, carers, GP practices and the hospital in Southampton working together to make sure people affected by cancer get the support they need in a place of their choice.   If you have experience, thoughts and ideas about how to make this better for people, your help is needed.

What the patient, carer and community advisory group will do
The group will help shape new services for people affected by cancer.  They will make recommendations about how to ensure patients, carers and loved ones get clear information about cancer care and treatment and other the support where and when they need it.
 
The group will meet 6 times a year for 1 hour. Until people can meet face to face again, the group will meet online and support will be provided with accessing online meetings. Members will receive a financial contribution to the cost of joining virtual meetings. They will also be offered opportunities to get involved in other ways if they wish to.
 
I am interested, what do I do now?
Anyone affected by cancer can get involved and recruitment is ongoing all year round. If you would like to get involved or arrange an informal chat to find out more, please contact heather.stacey@uhs.nhs.net  or call on 07553 332932.

​Below is also a copy of the official flyer, which you can share with anyone who may be interested.
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13/10/2020

Save the date: Free online health and wellbeing session on 18th November

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The Cancer Services Partnership at NHS Hampshire Hospitals Foundation Trust (HHFT) are hosting a virtual session on 18 November 2020 focussing on how people can improve their mental heath and wellbeing during challenging times. This session is not just for cancer patients - family, friends and carers are also encouraged to join. 

This is a half-day event starting at 9.15am and it will have four 30-minute sessions followed by time to ask questions afterwards. 

If you are interested in joining, please email cancerservicespartnership@outlook.com and a copy of the agenda and Zoom joining information will be shared with you closer to the event date. A copy of the flyer can be found below.
csp_autumn_forum_18112020_-_save_the_date_flyer.pdf
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5/10/2020

Help inform evaluations of cancer services in Dorset, Hampshire and the Isle of Wight

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If you’ve had a cancer diagnosis, the Macmillan Survivorship Research Group (MSRG) at the University of Southampton want to hear from you about your experiences.
 
Commissioned by the Wessex Cancer Alliance, the MSRG will be setting up a User Reference Group, who will support the evaluation of cancer services across Dorset, Hampshire and the Isle of Wight. The User Reference Group’s participating in the evaluation will help ensure personalised cancer services are responding to the needs and services of everyone diagnosed with cancer.
 
Participating in this group will involve:

  • Attending virtual meetings up to three times a year over the next two years (via Microsoft Teams or Zoom)
  • Reading documents in preparation for meetings and participating in discussions
 
One to two representatives from the group will also be a part of Advisory Group (which will also meet up to three times a year on Microsoft Teams or Zoom, starting 9 October 2020.) However, recognising the short notice period, input will be sought outside the meeting from members if attendance is not possible. Expenses incurred through attended these meetings will be paid.
 
Taking part in the URG will provide an opportunity to get involved in all stages of the evaluation, including:

  • Evaluation design
  • Shaping evaluation delivery
  • Interpreting emerging evaluation findings
  • Shaping recommendations for practice
  • Advising and contributing to outputs from the evaluations
 
If you are interested in this opportunity, or have any queries about the role, please contact the Evaluation Lead for the MSRG, David Wright at D.Wright@soton.ac.uk. 

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12/8/2020

Members needed for the National Diabetes Audit

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The National Diabetes Audit (NDA) looks at the effectiveness of healthcare against guidelines set out by the National Institute for Health and Care Excellence (NICE). To do this, the NDA collects and analyses data and reports shared with a range of stakeholders to improve the quality of services for people with diabetes. 

The NDA are now recruiting volunteers for their advisory groups who will work with clinicians and researchers about the audit data, focussing on the elements of care that are important to people living with diabetes. Volunteers will represent the views on the care provided by health services. 

To get involved, visit Diabetes UK's website for more information and application forms. The closing date for applications is Friday, 28 August 2020.

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17/7/2020

North East Hampshire and Farnham Virtual Community Forum and Survey

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NHS North East Hampshire and Farnham Clinical Commissioning Group (CCG) wants to hear from local residents about their experiences of the Coronavirus pandemic to help improve services. There are two opportunities to get involved: participating in a virtual community forum and an online survey. More details below.
 
Virtual Community Forum
NHS North East Hampshire and Farnham Clinical Commissioning Group (CCG) would like to invite you to the next Community Forum, on 29th July 2020, between 2.30pm and 3.30pm. This will be a virtual event that will offer the opportunity to hear from us about the response to the pandemic, plans for the future, new ways of working and how feedback from local people is helping to shape the work of the CCG.
 
We understand that a virtual meeting does not allow for the same type of conversations that we would normally have face to face, so in order to get the most out of our time together we will be sharing more information and guidance a bit nearer the time on how you will be able to contribute during the event.
 
You can register for the event HERE and we encourage you to share this opportunity with your friends, family and colleagues.
 
Share your views and experiences
We also want to better understand the experiences that you and your family have had during the COVID-19 global pandemic. We have developed a survey with questions that focus not only on access to health and care services but also on how you have been coping and looking after yourself.
 
The views and experiences you provide us with will be used to shape your local health and care services, as well as influence the way we work with and support communities like yours, both during and after this crisis.
 
We are aware that many different organisations are asking for feedback at the moment but we would really appreciate your time and views at this critical moment for your local NHS health and care services.
 
This survey will take approximately 10 minutes to complete and we will be sharing the initial findings at the Community Forum. Please share with friends, family and contacts so that we can get a real picture of what has worked and what has been challenging for local people.
 
The survey can be accessed here: https://www.surveymonkey.co.uk/r/NEHFCCG. Please share this link with others who live in North East Hampshire or Farnham.​

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6/7/2020

NHS Help Us Help You South West Covid-19 Survey

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During the Covid-19 pandemic, people who work in health and care services and the voluntary and community sector across the South West have offered new choices to patients and the public, for example, by making more use of online and telephone appointments.

Our NHS colleagues across the South West, including Dorset, would like to know what you think about these new ways of working to help them understand how they can best meet the future needs of the people living in our region. 

Please share your views by clicking on the link below. The survey should take between 10-15 minutes:

https://www.smartsurvey.co.uk/s/Covid19SWExp/

The information you provide will be used by health and care organisations and commissioners at NHS England and NHS Improvement in the South West to help them understand what suits different people best in different parts of our region.

The survey will be open until 31 July, 2020. A report with the results of the survey will be published on the NHS England and NHS Improvement South West website and participating health and care organisations and shared with those who provide their email addresses.

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1/7/2020

Volunteers needed for testing new Cancer Matters website

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​The Dorset Cancer Partnership is seeking members of the public living in Dorset, Hampshire or the Isle of Wight to take part in user testing of their new website, Cancer Matters Wessex. Your feedback will help the development of the website before it is launched later this year.
 
What is Cancer Matters Wessex?
Cancer Matters Wessex is a new website that aims to provide more local and personalised information for cancer patients in Dorset and Hampshire and the Isle of Wight, including people who have had cancer in the past or are worried they may have cancer, and for family, friends and carers of patients living with cancer. The website is sponsored by the Wessex Cancer Alliance in collaboration with the Dorset Cancer Partnership and Macmillan Cancer Support.
 
The first phase launch of the website will focus on information about COVID-19 for cancer patients and how it will impact on their lives. The second phase launch will focus on information about specific cancer pathways, including diagnosis, treatment and support available.
 
How can I get involved?
If you’d like to participate in the user testing of the website, you will need access to an email account and a computer. Contact Ruth Webster (ruth.webster@dorsetccg.nhs.uk) by 10 July for further information.

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2/3/2020

Early Intervention in Psychosis (EIP) Workshop on 18 March 2020

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The Thames Valley and Wessex Strategic Clinical Network are hosting an Early Intervention in Psychosis (EIP) Workshop on 18th March 2020 from 9.30am to 4.00pm at Crowne Plaza, Basingstoke.

The event provides an opportunity to network with colleagues from across the region, hear from National and Regional leads, to share local initiatives and consider how we can work together to improve care across Thames Valley and Wessex. 

Topics will include national programme overview, regional EIP data, implementing peer support, clinical best practice from across the region and local best practice examples. 

This workshop is targeted at a variety of professionals including Clinical Directors, Chief Operating Officers, Commissioners, Clinicians working in EIP, Peer support workers, Pharmacists, Data leads and anyone else with an interest. 
​
Register for your place today by clicking here.

For any queries or help with registering please contact: Carolyn.Hinton@nhs.net or to view the event flyer, click here.

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10/1/2020

Patient Representatives Needed for Length of Stay (LOS) Engagement Event

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NHS England is seeking patient engagement and input into the Length of Stay (LOS) Programme.

We are planning to hold an engagement event with key leaders and interested parties to outline the LOS programme on 20 January at 10am to 1pm (registration opens at 9.30am). Lunch will be included. The venue is still to be confirmed but will be in Leeds city centre.

We would also like to invite a key patient network leader to take part on the LOS Oversight Group meeting to maintain a focus on inclusion of the patient voice across the programme. Attendance would be on a quarterly basis.

Background
The LOS programme advocates that patients are discharged (either home or to a care facility) rather than remaining in hospital when clinically appropriate and without unnecessary delay. Unnecessarily prolonged stays in hospital can significantly decondition patients, increase the risk of falls and expose patients to infections.

  • If you would like to attend the 20th January LOS engagement event please email Claire Eaton at Claire.eaton1@nhs.net

  • If you would like to nominate yourself as a patient network leader to take part on the LOS Oversight Group, please email Claire Eaton at Claire.eaton1@nhs.net

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12/12/2019

Eye Care Survey

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Regular eye tests, or sight tests, are the best way to ensure your eyes are healthy and make the best use of your eyesight. Adults with learning disabilities and/or autism are 10 times more likely to have a serious sight problem (SeeAbility, 2016.) Eye tests can monitor any changes in how well your eyes can see, confirm if you need glasses and/or contact lenses, and monitor diseases. 

Wessex Voices is working with NHS England Wessex (South) and SeeAbility to understand how eye care and eye tests can be improved for people with learning disabilities and/or autism in Dorset, Hampshire and the Isle of Wight.

What is the survey about?
In our new survey, we want to know what are the problems and how can accessibility be improved? Questions in the survey will ask about the experiences of:
  • Eye tests (also called sight tests)
  • Having your glasses or contact lenses fitted
  • Taking care of your glasses or contact lenses
  • If you don't go to eye tests, what could be improved to help you go?

Who do we want to hear from?
We want to hear from adults with learning disabilities and/or autism, people with complex needs, and their carers/supporters. 

The survey will be available online (including Easy Read) and hard copies with reply paid envelopes (including Easy Read). We are also doing face to face interviews with individuals, as well as speaking at group forums and meetings. Get in touch with us if you would like Easy Read versions, hard copies or would like us to speak with your group or for an individual interview.

When is the survey open?
The survey is now closed; it was open from 20 December 2019 to 16 February 2020. 

When is the report available?
The report will be published in 2020 on our website. Please keep checking our websites for updates or if you'd like to receive a copy when it is available, you can sign up by emailing wessexvoices@helpandcare.org.uk.

Where can I get more information about eye care and tests?
  • The NHS has general information available on their website: www.nhs.uk/live-well/healthy-body/look-after-your-eyes/
  • They also have information about free NHS eye tests and vouchers for prescribed glasses, for those who are eligible: www.nhs.uk/using-the-nhs/help-with-health-costs/free-nhs-eye-tests-and-optical-vouchers/
  • SeeAbility also has a variety of information, including printable PDFs in Easy Read: www.seeability.org/looking-after-your-eyes

Contact details
If you have any questions or would like to get involved, please emali us at wessexvoices@helpandcare.org.uk.

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27/11/2019

Coaching offer for people representing patient and public voice in the NHS

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NHS England and NHS Improvement is offering coaching for Patient and Public Voice (PPV) partners as part of its ongoing support offer.
 
We are offering places to people who are currently involved in the work of NHS England and NHS Improvement or are supporting health and care system transformation programmes (STP, ICS, Primary Care networks, etc.) on a regular basis. The places are aimed at PPV partners who are supporting major changes in health and care services and who would like to further develop their strategic or practical skills and so support them to strengthen their voice in their volunteering role.
 
The coaching will be provided by an accredited employee coach or an employee undertaking this qualification, both would also coach NHS England employees.
 
This development opportunity is aimed at strengthening the patient voice. The offer is for six hours coaching including one face to face meeting. We have limited places available. This opportunity does not attract any type of involvement payment. Expenses incurred would be covered as per our expenses guidance; these are expected to be minimal as the majority of the sessions would be conducted by telephone wherever possible.
 
Criteria


- We would anticipate that you would have been volunteering for a minimum of four months representing patient voice (less will be considered if you feel you have had enough time in the role to have something you wish to receive coaching on)
- We will consider location as part of the criteria to get a spread across the country and to fit with coach availability
- You will need to have a specific issue related to your volunteering role which you would like to work through with your coach. This should be something that will help you increase your effectiveness in representing patient voice (this will remain confidential between yourself and your coach)

 
More information and how to apply
 
If you are interested please send an email to england.ppve-learning@nhs.net requesting an application form and a guide with more details. As part of your application, you will be asked to include details of your sponsor and a supporting statement from them. Or visit their website: https://www.england.nhs.uk/participation/learning/learning-for-patients-and-the-public-non-accredited-courses/.

​
The closing date for receipt of completed application forms for this year will be 5 December 2019.



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