Have you been diagnosed with breast cancer (stage 1-3) within the past 24 months? Researchers at the University of Surrey would like to hear about your experiences.
Understanding factors that influence how people cope after a cancer diagnosis is important to better support those recently diagnosed. University of Surrey is exploring the different ways people think about their illness and how this may be associated with their psychological wellbeing.
We are looking for people to fill out a short questionnaire exploring thinking styles, wellbeing and health. Findings will help inform interventions to support for those recently diagnosed. You must be over 18 years of age and living in the UK to take part.
If you're interested in participating, please click on the following link to complete the survey: https://surreyfahs.eu.qualtrics.com/jfe/form/SV_e2tDvQrWtSx5xBj
If you would like more information, please email: firstname.lastname@example.org
gf you or a loved one has been affected by cancer, you could help improve cancer support in Southampton. Macmillan Cancer Support and the Wessex Cancer Alliance (WCA) are working together on a new project, the Right By You patient, carer and community advisory group.
Why your help is needed
People have told Macmillan and WCA that cancer care provided by GP practices and hospitals is not always joined up and people don’t always get the support on the things that matter to them.
“I have this team around me, supporting me…. sometimes the team don’t work very well together”
“It’s the little things, that are not the medical things in the community … it can feel as if we are left to our own devices”
This new project is about patients, carers, GP practices and the hospital in Southampton working together to make sure people affected by cancer get the support they need in a place of their choice. If you have experience, thoughts and ideas about how to make this better for people, your help is needed.
What the patient, carer and community advisory group will do
The group will help shape new services for people affected by cancer. They will make recommendations about how to ensure patients, carers and loved ones get clear information about cancer care and treatment and other the support where and when they need it.
The group will meet 6 times a year for 1 hour. Until people can meet face to face again, the group will meet online and support will be provided with accessing online meetings. Members will receive a financial contribution to the cost of joining virtual meetings. They will also be offered opportunities to get involved in other ways if they wish to.
I am interested, what do I do now?
Anyone affected by cancer can get involved and recruitment is ongoing all year round. If you would like to get involved or arrange an informal chat to find out more, please contact email@example.com or call on 07553 332932.
Below is also a copy of the official flyer, which you can share with anyone who may be interested.
The Cancer Services Partnership at NHS Hampshire Hospitals Foundation Trust (HHFT) are hosting a virtual session on 18 November 2020 focussing on how people can improve their mental heath and wellbeing during challenging times. This session is not just for cancer patients - family, friends and carers are also encouraged to join.
This is a half-day event starting at 9.15am and it will have four 30-minute sessions followed by time to ask questions afterwards.
If you are interested in joining, please email firstname.lastname@example.org and a copy of the agenda and Zoom joining information will be shared with you closer to the event date. A copy of the flyer can be found below.
If you’ve had a cancer diagnosis, the Macmillan Survivorship Research Group (MSRG) at the University of Southampton want to hear from you about your experiences.
Commissioned by the Wessex Cancer Alliance, the MSRG will be setting up a User Reference Group, who will support the evaluation of cancer services across Dorset, Hampshire and the Isle of Wight. The User Reference Group’s participating in the evaluation will help ensure personalised cancer services are responding to the needs and services of everyone diagnosed with cancer.
Participating in this group will involve:
One to two representatives from the group will also be a part of Advisory Group (which will also meet up to three times a year on Microsoft Teams or Zoom, starting 9 October 2020.) However, recognising the short notice period, input will be sought outside the meeting from members if attendance is not possible. Expenses incurred through attended these meetings will be paid.
Taking part in the URG will provide an opportunity to get involved in all stages of the evaluation, including:
If you are interested in this opportunity, or have any queries about the role, please contact the Evaluation Lead for the MSRG, David Wright at D.Wright@soton.ac.uk.
The National Diabetes Audit (NDA) looks at the effectiveness of healthcare against guidelines set out by the National Institute for Health and Care Excellence (NICE). To do this, the NDA collects and analyses data and reports shared with a range of stakeholders to improve the quality of services for people with diabetes.
The NDA are now recruiting volunteers for their advisory groups who will work with clinicians and researchers about the audit data, focussing on the elements of care that are important to people living with diabetes. Volunteers will represent the views on the care provided by health services.
To get involved, visit Diabetes UK's website for more information and application forms. The closing date for applications is Friday, 28 August 2020.
NHS North East Hampshire and Farnham Clinical Commissioning Group (CCG) wants to hear from local residents about their experiences of the Coronavirus pandemic to help improve services. There are two opportunities to get involved: participating in a virtual community forum and an online survey. More details below.
Virtual Community Forum
NHS North East Hampshire and Farnham Clinical Commissioning Group (CCG) would like to invite you to the next Community Forum, on 29th July 2020, between 2.30pm and 3.30pm. This will be a virtual event that will offer the opportunity to hear from us about the response to the pandemic, plans for the future, new ways of working and how feedback from local people is helping to shape the work of the CCG.
We understand that a virtual meeting does not allow for the same type of conversations that we would normally have face to face, so in order to get the most out of our time together we will be sharing more information and guidance a bit nearer the time on how you will be able to contribute during the event.
You can register for the event HERE and we encourage you to share this opportunity with your friends, family and colleagues.
Share your views and experiences
We also want to better understand the experiences that you and your family have had during the COVID-19 global pandemic. We have developed a survey with questions that focus not only on access to health and care services but also on how you have been coping and looking after yourself.
The views and experiences you provide us with will be used to shape your local health and care services, as well as influence the way we work with and support communities like yours, both during and after this crisis.
We are aware that many different organisations are asking for feedback at the moment but we would really appreciate your time and views at this critical moment for your local NHS health and care services.
This survey will take approximately 10 minutes to complete and we will be sharing the initial findings at the Community Forum. Please share with friends, family and contacts so that we can get a real picture of what has worked and what has been challenging for local people.
The survey can be accessed here: https://www.surveymonkey.co.uk/r/NEHFCCG. Please share this link with others who live in North East Hampshire or Farnham.
During the Covid-19 pandemic, people who work in health and care services and the voluntary and community sector across the South West have offered new choices to patients and the public, for example, by making more use of online and telephone appointments.
Our NHS colleagues across the South West, including Dorset, would like to know what you think about these new ways of working to help them understand how they can best meet the future needs of the people living in our region.
Please share your views by clicking on the link below. The survey should take between 10-15 minutes:
The information you provide will be used by health and care organisations and commissioners at NHS England and NHS Improvement in the South West to help them understand what suits different people best in different parts of our region.
The survey will be open until 31 July, 2020. A report with the results of the survey will be published on the NHS England and NHS Improvement South West website and participating health and care organisations and shared with those who provide their email addresses.
The Dorset Cancer Partnership is seeking members of the public living in Dorset, Hampshire or the Isle of Wight to take part in user testing of their new website, Cancer Matters Wessex. Your feedback will help the development of the website before it is launched later this year.
What is Cancer Matters Wessex?
Cancer Matters Wessex is a new website that aims to provide more local and personalised information for cancer patients in Dorset and Hampshire and the Isle of Wight, including people who have had cancer in the past or are worried they may have cancer, and for family, friends and carers of patients living with cancer. The website is sponsored by the Wessex Cancer Alliance in collaboration with the Dorset Cancer Partnership and Macmillan Cancer Support.
The first phase launch of the website will focus on information about COVID-19 for cancer patients and how it will impact on their lives. The second phase launch will focus on information about specific cancer pathways, including diagnosis, treatment and support available.
How can I get involved?
If you’d like to participate in the user testing of the website, you will need access to an email account and a computer. Contact Ruth Webster (email@example.com) by 10 July for further information.
The Thames Valley and Wessex Strategic Clinical Network are hosting an Early Intervention in Psychosis (EIP) Workshop on 18th March 2020 from 9.30am to 4.00pm at Crowne Plaza, Basingstoke.
The event provides an opportunity to network with colleagues from across the region, hear from National and Regional leads, to share local initiatives and consider how we can work together to improve care across Thames Valley and Wessex.
Topics will include national programme overview, regional EIP data, implementing peer support, clinical best practice from across the region and local best practice examples.
This workshop is targeted at a variety of professionals including Clinical Directors, Chief Operating Officers, Commissioners, Clinicians working in EIP, Peer support workers, Pharmacists, Data leads and anyone else with an interest.
Register for your place today by clicking here.
For any queries or help with registering please contact: Carolyn.Hinton@nhs.net or to view the event flyer, click here.
NHS England is seeking patient engagement and input into the Length of Stay (LOS) Programme.
We are planning to hold an engagement event with key leaders and interested parties to outline the LOS programme on 20 January at 10am to 1pm (registration opens at 9.30am). Lunch will be included. The venue is still to be confirmed but will be in Leeds city centre.
We would also like to invite a key patient network leader to take part on the LOS Oversight Group meeting to maintain a focus on inclusion of the patient voice across the programme. Attendance would be on a quarterly basis.
The LOS programme advocates that patients are discharged (either home or to a care facility) rather than remaining in hospital when clinically appropriate and without unnecessary delay. Unnecessarily prolonged stays in hospital can significantly decondition patients, increase the risk of falls and expose patients to infections.
Regular eye tests, or sight tests, are the best way to ensure your eyes are healthy and make the best use of your eyesight. Adults with learning disabilities and/or autism are 10 times more likely to have a serious sight problem (SeeAbility, 2016.) Eye tests can monitor any changes in how well your eyes can see, confirm if you need glasses and/or contact lenses, and monitor diseases.
Wessex Voices is working with NHS England Wessex (South) and SeeAbility to understand how eye care and eye tests can be improved for people with learning disabilities and/or autism in Dorset, Hampshire and the Isle of Wight.
What is the survey about?
In our new survey, we want to know what are the problems and how can accessibility be improved? Questions in the survey will ask about the experiences of:
We want to hear from adults with learning disabilities and/or autism, people with complex needs, and their carers/supporters.
The survey will be available online (including Easy Read) and hard copies with reply paid envelopes (including Easy Read). We are also doing face to face interviews with individuals, as well as speaking at group forums and meetings. Get in touch with us if you would like Easy Read versions, hard copies or would like us to speak with your group or for an individual interview.
When is the survey open?
The survey is now closed; it was open from 20 December 2019 to 16 February 2020.
When is the report available?
The report will be published in 2020 on our website. Please keep checking our websites for updates or if you'd like to receive a copy when it is available, you can sign up by emailing firstname.lastname@example.org.
Where can I get more information about eye care and tests?
If you have any questions or would like to get involved, please emali us at email@example.com.
NHS England and NHS Improvement is offering coaching for Patient and Public Voice (PPV) partners as part of its ongoing support offer.