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Do you know, or work with, male cancer patients or carers from ethnic minority backgrounds? Would they be willing to share their experiences with brap? brap are an equalities charity working with NHS England to look at the lived experiences of ethnic minority cancer patients and their carers. It would involve a 45 minute interview at a convenient time and location of your choosing. It could be a telephone interview if you would like. brap are able to cover the cost of local travel expenses for participants. The findings from this project will be used to improve how the NHS responds to ethnic inequalities in the experiences of cancer patients in the future. If you are able to help or would like to discuss the project please get in touch with Asif Afridi on asifa@brap.org.uk or on 0121 272 8455.
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This report collates and catalogues the state of play in the NHS patient experience world. It looks at the nature and extent of the NHS’s feedback enterprise, outlines major findings from recent quantitative and qualitative surveys and raises critical questions about its value.
It also recommends more support for NHS Patient Experience colleagues and the potential impact of cuts to Healthwatch funding. Click here to read it. What makes it hard to quit? Share your views about how they can help people give up smoking in Hampshire and the Isle of Wight. 
Cancer survival rates are higher than ever, and fewer people are dying from cancer. But we know that that there is more to do so that every patient has the best chance of survival and receives the very best treatment.
With a new five year funding settlement, the NHS is now developing a long-term plan. This includes looking at future priorities for cancer care in England. The NHS wants to hear from people, organisations and their networks about their experiences and priorities, including what has worked in your area. They are also asking for responses to the following questions:
Please send your feedback to the Wessex Cancer Alliance at England.wessexscn@nhs.net by the 10th September. Your response will be used locally and also shared nationally. Your answers will be confidential but it would be helpful if you could let us know who was involved in preparing your submission. Thank you in advance. NHS England are looking for expert PPV partners for a variety of groups who have a good knowledge and understanding of the health and care system nationally, regionally and/or locally to join their various advisory groups, and help shape NHS digital health services for people, patients and carers.
The main role of PPV partners is to ensure that patient voice is heard within the various groups by constructively challenging, offering insight and views from a patient/citizen perspective. NHS E are specifically looking for PPV partners who can demonstrate an understanding of and who have a strong interest in digital health services and the opportunity they provide in empowering people and patients to manage their health and care. Membership of the groups is for 12 months initially, and will then be reviewed. The closing date for applications is Monday 3rd September 2018 (midnight). Interviews (face to face or online) will be held week commencing 17th September 2018. Please go to the application form and information pack to apply and for further details. If you would like to receive an application pack in other formats, such as hard copy, please contact england.digitalhealth@nhs.net. If your child(ren) and family currently use the Community Children's Nursing Service in Hampshire, Isle of Wight, Southampton and Portsmouth, the service would be very grateful for your feedback. They will use this to make improvements for the future. Please complete a short questionnaire by the 23rd August via the following links: Parents: https://www.surveymonkey.co.uk/r/CWB923B Children: https://www.surveymonkey.co.uk/r/CS8DLBL The service are also looking for feedback from the Community Children's Nurses, GPs and Pediatric Consultants via the following questionnaires: CCN’s: https://www.surveymonkey.co.uk/r/3FFGQSF GPs: https://www.surveymonkey.co.uk/r/J68DH3F Paediatric Consultant: https://www.surveymonkey.co.uk/r/YBCKBP6 Thank you for taking the time to do this.  28/6/2018 Understanding why women aged 50 and are over aren't going for cervical and breast screenings. Tell us your experiences.Read NowIf you are aged between 50 and 65 and don't go for breast or cervical (smear tests) screening, would you be prepared to talk about why this is? Everyone taking part will receive a £20 voucher.
What do we want to ask you about? NHS England is concerned that the number of women over 50 years old going to their screening appointments is at a 17-year low. It is really want to understand the range of reasons why women aren't taking up this important health check, and what might encourage them to go. Join us for an informal group discussion on:
We will provide teas, coffee, cake and cover any travel/parking expenses. Places are limited so please book your place by contacting: Sue Newell, Wessex Voices Project Officer Email: sue.newell@helpandcare.org.uk | Mobile: 07595 424198 Sue will provide all practical details including how to get there. Please let her know if you have any specific needs to attend.  SCAS NHS FT 2018 Member satisfaction and Patient care survey
South Central Ambulance Service NHS Foundation Trust (SCAS) 2018 Member satisfaction and Patient care survey is now open and it’s your chance to give your feedback and help shape the Trust’s plans for the year ahead. It is important that SCAS, as a NHS Foundation Trust, takes account of feedback and views from members in our local communities who have used/use our emergency and non-emergency services. Information is submitted anonymously via https://www.surveymonkey.co.uk/r/875TF3G . A summary of the results will be included in the next members’ newsletter and will also be published on the Trust's website. Deadline for submitting the survey: Sunday 24 June 2018 at 23:59. Please don’t hesitate to call Monica Moro on 01869 365126 if you require a hardcopy of the survey, or email getinvolved@scas.nhs.uk. 3/5/2018 *Now closed. Poole Hospital is looking to improve the experiences of older patients with cancerRead Now Dr Nicola Mellor, one of the elderly care registrars at Poole Hospital, is in the middle of a year long project looking to improve the experiences of older patients with cancer. There is widespread recognition that older patients may have more complex needs and other health problems and social factors may impact on their access and response to treatment.
She is working to identify older patients who would benefit from having a geriatric/medical review alongside their oncology treatment and determining the impact of this review on their treatment. As part of this, she is keen to engage with patients to find out what matters to them. De Mellor is aiming to look at people over the age of 70 years but could stretch down to 65. If they are willing to meet, she would be happy to travel to them if they're not based locally or can find somewhere to meet at the hospital. She anticipates using a semi structured interview to learn about their experiences and it may take 30-60 minutes of their time. Her contact details are - email nicolamellor@doctors.org.uk or by mobile on 07920097662.
The Wessex Cancer Alliance team are putting on an event in July to look at how they can improve the information and support for people living with a diagnosis of cancer. They want to learn from people’s experiences to ensure they are getting this right or what can be improved. The invitees are anyone who has been affected by cancer and health or social care professionals working with cancer patients across Wessex. Date: Wednesday 18th July 2018: 10.00am to 4.00pm Venue: The Hilton Hotel, Bracken Pl, Chilworth, Southampton SO16 3RB To book a place: email england.wessexscn@nhs.net There is free parking and disabled access. Lunch and refreshments will be provided. Travel expenses can be claimed too. 
28/3/2018 * Now Closed. Thank you for your help* Patients with COPD are invited to discuss their views on lung cancer screeningRead Now
22/3/2018 *Now ended. Thank you for attending* Webinar: ‘Improving maternity services in Wessex’ 26th April, 10.30amRead Now ‘Improving maternity services in Wessex’
(Southampton, Hampshire, Isle of Wight, Portsmouth and Dorset) Webinar: Thursday 26th April, 10.30am Join us for this exciting webinar where you can hear about how feedback regarding maternity services in Wessex is being used to improve services. Hear directly from the Local Maternity System (LMS) boards of Hampshire and Isle of Wight, and from Dorset. See how you can make a difference to improving maternity services in Wessex. On 26th April at 10.30am… Click: Join WebEx meeting or go to link: https://healthsector.webex.com/healthsector/ Enter Meeting number: 957 237 630 Attendee access code: 107 870 58 Join by phone +44-800-9171950 If you require further assistance please contact: Costin Matei E: cmatie@nhs.net T: 07901116866 Or Sara Latham E: sara.latham2@nhs.net T: 07467689350 . 28/2/2018 * Now Closed. Thank you for your help* Are you a lady from Eastern Europe and living in Dorset, Hampshire or the Isle of Wight? We would love to talk to you!Read Now Research shows that women from Eastern European countries are less likely to have cervical screening in the UK than British women. Prośba o informacje Badania wykazały, że kobiety z krajów Europy Wschodniej mieszkające w Wielkiej Brytanii poddają się badaniom przesiewowym w kierunku raka szyjki macicy rzadziej niż Brytyjki. We would like to find out - Why some women from Eastern European countries don’t use the NHS for screening? Chcielibyśmy się dowiedzieć - Dlaczego niektóre kobiety z Europy Wschodniej nie poddają się badaniom przesiewowym przeprowadzanym przez NHS? What could be changed to encourage more women to attend? Tell Wessex Voices (a collaboration between NHS England and five local Healthwatch in Hampshire and Dorset) what you think by completing this questionnaire. All questions are optional and feedback is anonymous. Co można zmienić, aby zachęcić kobiety do udziału? Powiedz Wessex Voices (efekt współpracy pomiędzy NHS England i pięcioma lokalnymi komisjami ds. zdrowia w Hampshire i Dorset), co myślisz, wypełniając poniższą ankietę. Wzięcie udziału w ankiecie jest dobrowolne, a ankieta jest anonimowa. Please complete our questionnaire - below - and send it to sarah.brown@helpandcare.org.uk by Thursday 29th March. Please call 07966 529 721 if you have any questions.
15/2/2018 *Now ended. Thank you for attending* NHS England Patient and Public Voice (PPV) Partners Event 21st March 2018Read Now NHS England Patient and Public Voice (PPV) Partners Event 21st March 2018
The changing role of public participation in a transforming NHS The Next Steps on the Five Year Forward View states “Making progress on our priorities and addressing the challenges the NHS faces over the next two years cannot be done without genuine involvement of patients and communities.” (March 2017) Over the last 5 years NHS England has developed relationships with over 800 PPV Partners who are part of our Committees, Working Groups, Advisory Groups and Clinical Reference Groups, amongst others. These valued relationships are central to all our work going forward. When we refer to ‘PPV Partners’ we mean patients, carers, service users and members of the public who get involved in our work on a regular basis. This event will also be open to PPV Partners who support CCGs and Trusts. We would like to invite you to the NHS England PPV Partners event on: Wednesday 21st March 2018 10am – 4pm Hilton Wembley, London This event is for all of NHS England PPV Partners and aims to:
This event is free for NHS England PPV Partners. Partners should seek transport booking and expenses to attend the event from the programme they support. (Please note that NHS England will cover reasonable expenses to enable you to attend this event, as set out in our PPV Partners Expenses Policy but we are not able to offer any involvement payments for attendance). If you are interested in contributing to the design and content of the day please contact us at england.nhs.participation@nhs.net and a member of the team will be in contact with you. We would also be grateful of your support in completing and sharing the links to this year’s surveys for NHS England PPV Partners and for Chairs of NHS England committees / groups / boards. The aim of the surveys is to find out about the difference that PPV Partners have made and about experiences of working with NHS England, with a view to informing improvements. We are keen to hear from PPV Partners working with NHS England and from chairs of NHS England committees with one or more PPV Partner members. Versions of the PPV Partners survey in Word and easy read can be made available on request – please email england.nhs.participation@nhs.net The deadline for completion is 23rd March. We look forward to working with you on the day Best wishes Public Participation and Specialised Engagement Teams NB Tickets are booked through our events team. You can only book once using your email address. If someone is booking on your behalf they will need to set up an account using your email address (or log into your account if you have booked before). If you are having problems using the website try using Fire Fox or Chrome. |
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